I really don't want to turn this into a healthblog or a pityparty, but sometimes the follies of my healthcare adventures are just too, I don't know... major I guess, to let fade away into the back of my brain.
I guess when I was getting my head MRI'ed today, I should've given the techs a disclaimer. An MRI of my head looks a hot mess. I had my face dug apart a couple years ago and I only have about 10% of a sinus cavity on the right side and there are a few implants keeping my eyeball in place on that side and parts of my nose are missing and there is tissue where tissue shouldn't be and no tisssue where tissue should be. Needless to say, it doesn't look normal at all on the inside of my head.
But, I wasn't there for that nonsense. I am finally taking responsibility in getting the care I probably should have gotten twenty some years ago. I've never really been able to turn my head to the left very well, and I get blinding and bloody headaches on a pretty regular basis. Blinding like I can't see anything and bloody like blood comes out of my throat and nose and ears. It's happened almost my whole life, and my parents took me to a neurologist almost 30 years ago when these headaches started right around the time my grandma died of a brain tumor and they didn't find anything wrong so I was just sort of convinced that there was nothing wrong and it was just part of Being Me to have all those gross headaches and I never went back to the doctor. Until now.
Anyway, I had the MRI (have you ever had an MRI? On your head? Let's discuss privately. Because dudes? That effing blows. And I swear the pounding that happens in that tube? Is the devil talking to me. I hear words like "tumor" and "polyps" and "die bitch" every time the machine booms) today and when I got out of the machine, the tech, who was about 300 years old and the sweetest little thing I've ever run across in the healthcare industry, held my hands and got all teared up when she told me it was going to be okay, no matter what. Then she touched my face and gave me a twice over and kept her hand on my back as I walked down the hall to go put my bra and earrings back on.
I'm assuming it was because behind all the gorgeousness you see on the outside, I look like John Merrick on the inside.
I'm hoping it was because behind all the gorgeousness you see on the outside, I look like John (his real name is Joseph) Merrick on the inside.
And not like, she happened upon a tumor or a polyp or anything.
Cause I don't want to die, bitch.

44 degrees {comments}:
Oh Lora...NO!
I've had an MRI, but not on my brain or much of anything that matters at all. *hugs*
Yes,regular MRIs on my brain to make sure what they suspect will eventually be MS doesn't turn into it.
Oh man. Say it ain't so.
Love you.
I'm thinking about you - and I hope you get your results back really really soon so you know if/what you're dealing with.
Gawd, I'm thinking of you here and hope that like with me, the tests show nothing that can't be fixed xx
Smidge
It had better not be anything.
Naaah - she just has never seen a hot mess like you got going on. Good thoughts always!
Ummmmmmm. I think you've earned the right to bitch, woman! And what's with these overly-sympathetic techs? I had one give me a grandmotherly hug after a chest x-ray and I fell to pieces (literal sobbing). Turned out I had pneumonia, but jeez!
Damn. She better do that to everyone no matter what. Right? Just think that. Think "I'm not special and that's her standard work M.O."
Oh my goodness dear, I hope it all comes out good. I've had an MRI done and i feel it's going to collapse on me or im not going to fit in it because my head is quite big.
I hate them things.
My MRI's are a hot mess, too - two brain surgeries and a little extra shit put in my head and it really throws those MRI techs and ER doctors off if you don't give them a heads up first!
I hope it all goes well. I figure if you've lived 30 years like this, it's probably nothing major, right? If it was, you'd have known it by now. KEEP US POSTED and good vibes and healing, peaceful thoughts are coming your way.
I had an MRI where, when it was over, no one would look at me, even when saying "Your doctor will be in touch." Yep, it sucked.
ive had far too many mri's for my tastes. im actually able to take naps in there now.
i hope your okay playa. i hate waiting on those blasted results
Crossing my fingers that it's just the John Merrick insides. It just has to be.
Well damn. I hope the results come back with just the "original" abnormalities and nothing serious.
I've had an MRI because of my migraines and it was a miserable experience like you described. Take care!
well all I know is that nothing is wrong because no one else I know and care to have lunch with likes Indian food. so there.
You are so not going to die. I mean, WHATEVER.
I think that what the old lady saw inside your head was something like the Tazmanian Devil in Looney Toons. Because you are all kinds of crazy (in a good way) and you are always going/going/going and you say what you mean (I think Taz would, too, if he could speak) and just keep moving along. & that old lady, now she has never seen anyone with Taz in her cranial cavity and just threw her back a bit. She's more of a Bugs Bunny kind of person.
I get bad-ass migraines, so I've had an MRI. Sucks; I had to go to my happy place.
You get H/A's where you bleed???
I'm glad you're trying to see if there's something you can do.
Let us know.
Sounds like that MRI tech is either crazy, or needs a new job.
Remember, she's a tech - not a doctor. She's just taking pictures. It's not like the photographer who took my wedding pictures could diagnose if I had skin cancer. Bad analogy, but you know what I mean.
Take it slow. Wait for the results. Make a plan after that.
Hugs.
Goodness, I so hope everything is alright for you sweetie.
AND, yep I hate MRIs they totally suck!
Oh my honey!! You're ok!! You gotta be!
Yikes. I'm sorry. Sorry I don't have anything worthwhile to say but feel like I need to leave a comment anyways since I'm too damn far away to rush over right now and demand that we spend the next 48-72 hours together to make up for all the Lora time that I've missed out on over the last two years.
Maybe she just knew you play mommy to an almost 4 year-old in your other life. God only knows that tears, twice overs, and backpats are in order for that gig, regardless of how sweet and adorable the almost 4 year-old in question is. And, yes, in that case? It is going to be okay, no matter what. Sure, you might have to reshape your definition of "okay" a time or two...
I'm doubling my good thoughts East until I hear good results news. Love you, girl!
I am sure it was just because of the hot mess that is the inside of your skull and the lack of disclaimer before she peered into said hot mess. You just caught her off guard. She probably thinks you don't know what a hot mess you got up there.
That, and she's the nicest health care professional ever and does that comforting stuff with everyone.
It's like Holli said, "...that's her standard work M.O."
Sometimes it would be easier to still be a lurker, then I wouldn't have to try (and subsequently fail) to find the words of support and comfort that will make things better, but won't really. So, please apply all the positive and supportive stuff everyone else said about the MRI etc. I can't even begin to understand how you must be feeling.
On to your writing. You craft your words so remarkably. I get kind of used to how well you write, then suddenly I am blown away all over again. This is one of those times.
One last thing...she was perhaps reacting to what you HAVE been through, not anything you WILL go through. Sure of it.
Vaguely tangential, but *relatively* on post (and aimed at making you smile...)
My mate Stray Photon (yes, that actually *is* his real name) is a radiographer. A rocking one, at that. Anyway, Stray knows another, Scottish, almost as rocking radiographer who claims he has used an MRI machine to amplify his guitar! Lord only knows how he does it, but that, presumably, would account for all the pounding noises you can hear...
(He's into AC/DC, obviously...hence the pounding...and the schoolboy shorts)
One last thing: hope you're OK
L.U.V. on ya,
Bob
I love your ability to turn a serious situation into a laughfest for me at my laptop in the morning! "Die Bitch" hahaha that was great! Hope everything works itself out and they are able to find out what is causing you these gross headaches, hang in there Lora things will get better!
MRI's are noisy, um, NOISY, migraine-inducing, claustrophobic places!
I'm so sorry for your trouble! Let's hope they come up with some help for you after you had to lay through that.......!
Wow, Lora, I really hope they don't find anything. I've had a lot of MRI's done but only on my body not my head. Body MRIs aren't fun either--all of you, except your head is in a restrictive tube, and you hear those same noises.
Also, I really hate when the doctors, nurses, techs, whatever, get you all worked up before they even know if something is seriously wrong. I had an OBGYN send me in to hysterical tears over a slightly enlarged ovary.
I love you.
I take a nap when I have a MRI. They give me headphones (even when I had one on my head), and I just listen to the music and sleep. I think my arms are about the only thing on my that hasn't been MRI'd.
FINGERS CROSSED FOR YOU. Maybe the tech was just a weeper, in which case maybe the health industry is not the place for her.
Keeping my fingers crossed for you. You better let us know what happens.
*hugs* Hope you find out very soon that you're MRI is fine. I have had one on my brain too a few years ago to try and diagnose unexplained dizziness. I'm thinking she was just a sweet old lady.
Lora, your blinding bloody headaches scare me. Glad you did the MRI thing, regardless of the pounding.
And call me crazy, but John Merrick was a hell of a lot hotter and sexier than most people I run into. I loved him in the Elephant Man. And to some degree I relate to him. We all do. But I suppose, if you're going to have the whole JM thing going on, better that it's inside even if it does make blood show up at the most inopportune time.
{I didn't mean for that to sound like a joke}
I promise to remember you in my prayers. Somehow though, I think God has you in the palm of his hand.
I love you.
I hope it all turns out ok. I will be sending positive thoughts your way. I love you too much for anything bad to happen!
well- no I haven't had an MRI, but sometimes I hear the devil in my dryer.
Also? I don't think I'd like you to die either, so... umm... skip that, okay? Okay.
Ugh - Girl I'm so sorry. I'm new to the blog obviously so I had no idea all you've had to go through. I want to go back and read that other link. I'm thinking of you. Let me know how things go. If you need anything feel free to email me kworthington569 at Gmail dot com.
I had to have and MRI on my neck and sinuses last fall--over an hour in that fricking tube. And I'm claustrophbic. The secretary at the doctor's office gave me great advice: I just closed my eyes before I went in and didn't open them til I came out. I had a bit of panic anyway and found myself doing Lamaze breathing--AND my "baby" is almost 34. Odd how that comes back to you.
But they are the noisiest mo-fo's! Good god--you think the whole thing's gonna explode any second.
Hope all goes well and you find a solution to your problem....
I'm glad you are finally getting things looked at and have an answer for all of the trouble you've had with your headache's and whatnot. I don't know how you made it this long.
I'm hoping for the best and I'm glad that sweet old lady was there. She sounds wonderful.
Thinking of you.
Love you.
Um, yeah, hi.
What Domestic Goddess and Amanda said.
The tube does sound like it's talking to you. I make it say the rosary with me though. (Bonus point to Catholicism.) And then, like I do every time I am saying the rosary while lying down, I fall asleep and am way grateful when it's over.
Sorry. I don't mind the head MRI so so much but I sure don't wish them on anyone either.
May your first be your last!
When do you get the results?? Update please, ASAP.
Here's hoping it's nothing but the insane weirdness of each of our bodies. Do you know anything yet?
Well, that tech was way inappropriate if you ask me. I am a little late on my blog reading catching up so saw this late and just wanted to say that and hope you are doing ok.
I hope everything came out ok.
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