Many thanks to the commenters who said they've seen me in recent months and didn't notice my hairloss.
Of course you didn't. It's because I've been shampooing my hair with special stuff for volume and letting it airdry without combing it for lift and I've spent hours in front of a mirror finding the exact point where I can part my hair so you don't notice. Luckily there isn't much gone from the top so I can cover the sides with what's left up there. The part changes weekly. I carefully determine which side has more hair and put the part in the exact place where you can't see much headskin through the sparseness. Then I fill in all the holes and draw in a false hairline with brown eyemake up. Specially chosen to exactly match the darkest of my hairs. Go to light and it looks false. Too shimmery. Too made up.
I'm making it up as I go along.
I place hair pins in all the sections that tend to be particularly shifty so they can't move if they tried. If the wind tries. If a hand tries.
Then I put eye makeup where it belongs, so you'll look there instead of looking up. And a lower cut shirt than I normally wear so maybe your eyes won't travel northward.
I know you can't tell because I've been spending time with people who are also losing their hair and I can't tell theirs is falling out either. Until the breeze catches it or the light hits it just right and I can see their secret. One you wouldn't notice but I'm studying closely so I can make it my own. Save me a few hours of trying by stealing their time spent.
And have you seen me? Not much. I've been keeping busy with things that put me in front of strangers rather than people I know.
Losing your hair is bigger than just losing hair. I'm losing confidence. Beauty. Self worth. Self image. Self esteem.
Self.
I don't dare speak up or speak out because someone will look at me. They will see. They will stare. Point. Ask. Joke.
They won't, of course.
But I feel as though they might.
Losing one's hair isn't about how one looks. It's about how one feels.
It feels awful.
There is no right thing to say. I prefer "Oh my God!" or "Oh, yeah I see it" or "Why? How? When?".
Anything other than "I wish I'd lose some of this mop" or "you can have some of mine" or "I can't tell". Saying you can't tell makes me feel unvalidated. Like I've looked like this forever. Like I've felt like this forever. Or should have.
But I appreciate you saying you couldn't tell because it means my tricks are working.
You can't win for losing, can you? Say you don't notice and I'll wonder why. Say you do and I'll feel ugly.
How does it feel?
Like seventh grade.
Everyone is noticing. Waiting. Watching. Whispering. Wondering.
I feel huge. Shiny. More important and noteworthy than I really am.
You aren't supposed to feel this way twenty two years past the seventh grade.
It started about a year ago. I noticed that my hair wasn't the same. Different texture. Different color even. I put it up to aging. A doctor suggested it might be connected to some of the autoimmune problems I have. Another suggested menopause. Then it stopped. Then it started again, giant noticable clumps in the shower. I clogged the vaccuum while sweeping my bedroom. The lint trap in the dryer was making sweaters. Hair everywhere but on my head.
You don't know how warm your scalp is until you can feel it through your hair. Until you can put an entire finger- or two- down in a spot where hair used to be but is now gone. It's a revolting warmth. It makes me think about the time I was assaulted in a crowd. A disgusting, unwelcome, violation of crotchtemp warmth. My head reminds me of a shaved vulva. Like looking at Geraldo without his moustache. Unnatural. Unnerving.
I think it's stopping. Or slowing. I'm not sure. I had my hair cut short last week. The long hairs all over the place were unbearable to see. Half inch to three inch hairs are less horrifying. And they slide down the drain a bit easier. Get mistaken for cat hairs on the couch. The vaccuum sucks them right up.
There are tiny hairs along my hairline. My hairline that receded over an inch in the past couple months. I'm hoping they are new ones and not just what's left of the old.
Hoping.
Hope.
There's always that.
I take a lot of vitamins. Drink lots of water. Eat the right foods. Use the right shampoo. The right comb. Google combinations of "hair" and "loss" and "reasons" and "disorders" and "medicines I've taken/foods I've eaten/symptoms I've felt" and "women" and "female" and "baldness" and and and.
You can ask, you can suggest, and I can almost guarantee the answer is "yes, I've tried that/thought of this/stopped doing that/started doing this. I just don't know why this is happening to me."
"Are you experiencing any unusual levels of stress lately?", the doctor asked.
"I'm losing my fucking hair and I don't know why", I replied. "It's the most stressful thing I've ever been through".
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39 degrees {comments}:
I couldn't tell at BlogHer. I'm so sorry you're losing your hair. It has to feel like seventh-grade because you know. And who wants to put that much time into hiding something like that?
I just hope some scientist invents something soon for you. That works. No side effects.
other good things to say:
when can I see you so I can give you a hug?
-or-
buy this hat
http://tiny.cc/xx646
it says "I respect the fact you feel there is a problem here, and this is my suggestion for a quick fix"
Thanks Diane and Jenny Grace!
I have this same problem. I've been losing my hair in noticable quantity for 3 years, now. I was just diagnosed with celiac disease and severe IBS, both which have hair loss issues attached to them. Unfortunately, my loss has not slowed. My doctors now think it is perimenopause.
I'm 39.
I hope I like being bald.
When can I see you so I can give you a hug?
xo
This same exact thing is happening to my cousin too. We talk about it all the time. The female baldness gene runs on my mom's side of the family and so my cousin ended up with it and not me. You inherit your dad's hair genes. Apparently my dad's hair genes were ok but not her dad's (my mom's brother).
I know you aren't big on chemicals but she says the Nioxin haircare line works good for her. Might be something to check into.... she dyes her hair blond too... it hides it better and the dye plumps up the hair she does have.
my hair began falling out in 2001, shortly after i started taking a new medication that was the ONLY thing that worked on my psoriasis. it was gradual. then, when i'd sit at my desk at work, head in hand at the latest frustrating thing to cross my desk, i'd pull my hand back and there'd be a handful of hair in it...
when my secretary found me with a handful of hair sobbing at my desk, she grabbed me, dragged me to the mall, and said 'that's it, we're buying you some fucking hair!'
those little clip on ponytails got me through some of the worst of it, but eventually there wasn't much to clip it to... i was a scarf-wearer.
i know the depression that comes from losing the hair. it's grim. i gained 40 pounds that year, hated leaving the house.
on the bright side? i changed meds. it grew back. not as full, and for the first time in my life, curly. but it came back.
this sucks. been there, ate that pile of poo. i hope it is resolved for you soon...
You're beautiful.
Let's plan a visit.
I agree with the post from Miss Grace.
Lots of hugs indeed, whether I see you or not, Lora.
I'm sorry this is happening. If you go bald like my mom they sell some really cute wigs (that was meant to be humor).
well shit. I hate that this happened/is happening. I think the only thing I've ever noticed about your hair is being jealous of the color. I'll stand in line for a meetup! No fun snarfing Indian food solo!
I want to say it all. I'm sorry. That sucks. I'd love to see you and give you a hug. I haven't noticed in the pics you've posted. You could have fun with wigs if you want.
If somethings not normal I just want people to tell me it's not normal. Being validated is so important.
Please know you are in my thoughts.
I had hair loss problems as a result of one of the meds they had me on when I was first diagnosed with seizures. The doctors called it a minor side effect and acted like I was princess prissy pants for being unwilling to accept this "minor" side effect. Its a BIG fucking deal to lose hair. It made me feel like hiding. I just wanted to lose myself in books and never come out and see anyone ever, ever again. I had a close relative losing her hair from chemo and felt like a whore for being upset about my hair loss. But losing your hair as a woman: horrible. I bought a purple wig and purple vinyl pants that matched it. Wore them too. Made me feel better. But mine had a cause that was found pretty easily. I can only imagine what you're going through.
I have to admit that I thought you were exaggerating because I couldn't see it in your pictures. I understood how scary that must have felt, and felt sad for you, but I didn't offer any support of value. I'm so sorry Lora. Sorry that you are experiencing hair loss, and so much more!
I feel like you feel now. I've felt these things since I was in junior high. I have horrble acne that hasn't gone away with any diet change or over the counter products, even stuff you have to order. It's on my face all the time. If the breakouts aren't bad enough, it's the scars.
You know what I think when I see people with acne on their face? "That person is dirty and doesn't take care of themselves"! Even though I'm one of them!
I've got my first dermatologist appointment and I'm stoked! I didn't think my insurance would cover it so I never made an appointment! Plus, I've lost hope that anything will work! I'm trying to be positive about it! I'm afraid of getting excited and leaving the appointment with no cure, even in time!
Fingers crossed for both of us!
I've told you a million times and I'll tell ya again! You're gorgeous! I'm a woman and I know that I might as well be speaking French, unless you understand French. But you really are beautiful. And that's the least of what you've got going for you!
Please, for right now, smile and be happy. You have accomplished so much! Stay focused on those things okay? Try! That all might as well be French too, but I'm speakin' wisdom here! Truth!
Lots of love and hugs!
ah that is so really suck Lora. i am sorry that is happening. i'm assuming you've had your hormones checked? i knew a girl with really REALLY bad hair loss who had just found out her hormone levels were wacked and was doing some hormone replacement to work with it.
ah fucking life.
Have they tested your thyroid? Only ask because I am losing hair and eyelashes and my thyroid numbers came up wonky (retesting in a few weeks).
My sister's thyroid totally quit on her and she had hair loss - a lot - too. And my husband (who has no thyroid - long story) loses hair when his meds are off.
And that's all I've got for theories.
I read your UTI thing and didn't get my comment in but have you tried D-Manose? It's a supplement and it has done wonders for me with the UTI thing 'cuz i totally know that pain. Cranberry tea and D-manose.
I too began losing my hair after I had my weight loss surgery. It is still happening. I use smoke and mirrors to camouflage the loss. And I cut my hair real short so as to minimize the effect. I feel naked!! Exposed! Undressed!!
I know how you feel and I hug you and applaud you because walking around with less hair takes courage!! You are beautiful!
Hugs
SueAnn
your post this morning is heartbreaking. i know you know i know how incredibly ugly it feels to be losing hair and it just won't stop (i started another kind of vitamin because WHAT THE HELL!) but i still wanted to tell you that you're beautiful. beautiful, and smart and funny and awesome. not that that sort of thing has penetrated my armor of "yes, but the piles of hair are AWFUL!" but maybe you'll hear it a little bit. you are awesome, and better than the hair loss.
I love your response to your doc!
I really hope that this gets better for you Lora. I can't imagine how tough it must be and I'll be thinking of you.
You just CAN'T lose yourself, the world wouldn't be the same without Lora!!
Seriously, though, I'm sorry. That really blows.
When can I see you and give you a hug?
You know, I know how you feel (sort of). When I was 19 I was hit in the eye with a paintball. Over time it got yellower and droopier and the pupil just settled in the lower left corner and didn't move much. It lost volume so the lid drooped too. It was blind, but I got used to that. I was more worried about the way it looked. My friends and family said they didn't even notice anymore.
That didn't help. It's like the way I looked was just fine, nobody cared, nobody thought I was any less cute (as if). I always thought how shitty it was that people thought that was good enough for me. And I know that it wasn't who I was, but seriously, it made me self conscious. It made me hate to sit across a small table from someone. Friends and family were nice, kids I substitute taught - not so much. I know they were just kids and when I could hear them giggle about my eyes that pointed in different directions, instead of thinking "kids are jerks" I thought that "kids are saying what everyone is thinking." By everyone, it could have just been me.
I also hated getting pictures developed of wonderful times in my life (me on wedding day, me with a beautiful new baby, etc.) and being entirely depressed because all i could focus on was the bad. Getting it fixed was the best thing I ever did. It's not perfect, but it's a million times better.
So yeah, I know how you feel when people say they can't tell, or they hardly notice, etc.
I sound so grumpy - sorry!
Just so you know, you ARE awfully darned cute. I hope you can figure out a solution soon, so you can go back to feeling as cute as you are.
:)
Hair or no hair or less hair you rock. Hair means so much and it is scary and sucky to lose it.
Love that Flora Fedora hat.
So much of our self image is tied up in our hair, no matter how accomplished wonderful smart sexy brilliant successful we are. I blame it on Paul and his bassackwards views on women. I read 1 Corinthians 11:15 back when I was still trying to be the good girl every one thought I should be and damned if that phrase about a woman's glory isn't still rattling around in my head.
I'm so sorry. I'm sorry it's happening and sorry that you can't figure out why and sorry that it's putting you into a very unwanted limelight. I'm working on when I can see you so I can give you a hug... if sooner turns into later, I will pull whatever muscles necessary to make you feel hugged through my computer screen. LOVE YOU!!!!!
I've already told you my feelings on your hair loss and how it affects (not at all) your beauty. But it bears repeating. Also, for a bit of a sense of humor about it, here are 10 awesome things about losing your hair:
1. You can go as Sinead O'Connor to a Halloween party.
2. You just saved $200 a month on your stylist.
3. Think about all the awesome wigs you can try out.
4. Ninjas.
5. Because unlike Tommy Lee Jones, you make that look good.
6. You can channel your inner Sigourney Weaver anytime you want.
7. Bald is fucking hot.
8. You won't have to worry about getting your hair caught in the ceiling fan during wild sex when you're on top.
9. There was a scene in Piranhas 3D where a woman's face was ripped off because her hair got caught in the propeller. That won't happen to you. Although you'd still get eaten by the piranhas. Hmm...
10. I'd hit it.
Lora- Sending such a big hug.
And also chuckling at Avitable's list- I hope you did too!
I love that people love you enough to try and make you feel better. Whether we succeed or fail, we all want the same thing- for you to feel beautiful and loved.
BECAUSE YOU ARE BEAUTIFUL & LOVED.
Hope it's worked (at least a little bit).
This is just hard. I have friends who have dealt with this and they sport wigs.
Lots of fun crazy hot wigs.
But it's worse than acne. It sucks and I'm sorry you are dealing with it.
And I want to hug you AND buy you a hat.
Lora,
I understand. Am dealing with the same thing, except over a longer period of time, and I presume, at a slower clip. Washing and drying my hair is an exercise in sadness.
I'm gonna send you an email when I can. This sucks. I know.
you are a hotty and doing a great job camouflaging it. you head prob just wanted to give you more "material" for your improv.
It's awesome that you tell us about these things. I need reminding that everybody's got shit, bad shit, and to turn up the empathy a little bit. You're making the world a kinder place. The hair will come back, the fact of which does not and should not negate the way you feel.
I've got this dermatitis problem where for the past three years my nose goes from bright red to not so bright red. This is not Bukowski nose -- mine is Polish and beaklike, and it looks like a cardinal in reverse.
I am good at concealing things, so why does this problem have to be on my face? I mean now I've got the gels and the foams and the creams and the soaps and it's at a tolerable (non-Rudolph, though I'm still nervous around kids at Christmastime) level. But the other day, some guy, some hippie dude who's married to this Asian girl I know, says instead of goodbye, "Hey I hope your nose feels better."
My nose doesn't need to feel better, dude, I do.
Whether I see you or not you have a hug from me. We don't realize how much of ourselves are tied into the way we look until something like this happens.
If it makes you feel any better when I saw recent photos of you I was rather envying your curvy body that looked so incredible in those dresses you wore at BlogHer and I would love to have the bone structure you have in that pretty face of yours. So, see I didn't even notice your hair.
But in all seriousness, I'm sorry you are going through this and that it makes you feel so horrible.
Wow. 30 comments. A lot of people relating to you on this. I've had a few times in my life when I lost a lot of hair due to hormones. I think it was a year or two after each baby was born, when my body was shifting back into normal - I think my thyroid was giving control back or something. Freaked me out, so I can totally relate. I lost so much hair I had to call the Roto rooter man to clear the drains in the house and I was sure that all my hair was eventually going to fall out and I'd be completely, shiningly bald. I lost a lot in the front so I looked like my uncle Frank (not a pretty sight). I started getting really good at doing bad comb overs. Anyway, one day my hair stopped falling out. Then little spikey things began emerging and I noticed that was the new hair growing in. I took quite a while but eventually I had my hair back. I hope that happens to you too. I'm not sure what I would have done if it didn't, but, I think you'll figure it out.
Lora. I'm going thru it too. Mine's going a bit slower; I don't have clumps, but when I comb it, there are just strands in the front. I'm trying to grow out the top parts to compensate. And I cut it short. And can I tell you how much I despise short hair? On me, especially.
I can relate to every last raw feeling you put out there in this post. I've been wanting to write about it but wasn't sure I could do it justice. YOU did it justice. So thank you.
And you are right, the WORST thing about it is mentioning it and wanting someone to take me seriously and sympathize but most everyone just looks at me like I'm imagining things and tells me they can't tell. Which SHOULD make me feel better, but it so doesn't.
I wish I knew what was causing this. I am afraid it's just my new normal.
I asked my husband if he'll still love me when I'm bald. His response? "What will you do? Get a wig? They make good ones nowadays." I almost hit him, but honestly, he was just trying to help. *sigh*
Sweetie, I am really sorry. Sending lots of hugs and lots of love your way.
Dude 7th grade sucked enough the first time around! I wish there were words I could say to comfort you, make you feel better; or even grow hair. I wouldn't ever want to take away your validation, so I won't even pretend to know what to say...just know I'm here (you have my personal email) and thinking of you. Anytime...anything
Another thing we have in common! I have terribly fine hair that is thinning and thinning and in some spots bald. It's so frustrating to deal with and just makes me feel unhealthy and unattractive.
I have to do the same "tricks" you described to disguise it. Sure, it could be much, much worse. I know by the time I am in my 40s or 50s it will be though. And in my 60s or 70s ....well I have these perfect visuals of how my hair will look because Ive handled thousands of heads as a hairstylist.
It rarely goes back to "normal". I guess when I was taking vitamins and was pregnant it helped maybe 10-20%.
I do have a thyroid problem for which I take medicine. I second other commenters (as I have mentioned to you), ideas that it could be due to a thyroid or hormonal disorder. Meds help keep it from getting out of control, but a person with a disorder will usually have fine/thinning hair.
Tips:
If its partially a vanity issue and you want something just to look nice, you might consider a perm. I perm my hair. Honestly, without a perm, my hair would drive me crazy! Its naturally flat, fine and super straight.
Combined with being THIN, this makes it look really scraggly and blah. A perm will really volumize it. Of course, it will curl it, too. There are certain perms you can get though that will leave it just a little wavy. Email me if you want more info on this. It really helps with making it LOOK thicker. But its a big change, you gotta deal with having some curly or wavy hair, if you are used to straight.
Using only clarifying shampoos and volumizing shampoos. Alternate. (cause volumizing will build up) and conditioner
Thats all I do really. Im not big on styliing my hair, but if I were I would use a thickening cream and blow it upside down. That makes it really thick.
I know, its about those "spots" though. Soren doesnt help when he pulls MORE of my hair out in my sleep. My temples are bare/bald. When I put my hair in a ponytail, you can see all of my scalp :(
Its not fun.
I know it sounds stupid. Its just hair! But you dont get it until you start losing it....It must be representative of something more.
Anyway, glad you get it. Sorry you are going though it though.
I'm just catching up on your blog.
Check that thyroid if you havent!
Another thing we have in common! I have terribly fine hair that is thinning and thinning and in some spots bald. It's so frustrating to deal with and just makes me feel unhealthy and unattractive.
I have to do the same "tricks" you described to disguise it. Sure, it could be much, much worse. I know by the time I am in my 40s or 50s it will be though. And in my 60s or 70s ....well I have these perfect visuals of how my hair will look because Ive handled thousands of heads as a hairstylist.
It rarely goes back to "normal". I guess when I was taking vitamins and was pregnant it helped maybe 10-20%.
I do have a thyroid problem for which I take medicine. I second other commenters (as I have mentioned to you), ideas that it could be due to a thyroid or hormonal disorder. Meds help keep it from getting out of control, but a person with a disorder will usually have fine/thinning hair.
Tips:
If its partially a vanity issue and you want something just to look nice, you might consider a perm. I perm my hair. Honestly, without a perm, my hair would drive me crazy! Its naturally flat, fine and super straight.
Combined with being THIN, this makes it look really scraggly and blah. A perm will really volumize it. Of course, it will curl it, too. There are certain perms you can get though that will leave it just a little wavy. Email me if you want more info on this. It really helps with making it LOOK thicker. But its a big change, you gotta deal with having some curly or wavy hair, if you are used to straight.
Using only clarifying shampoos and volumizing shampoos. Alternate. (cause volumizing will build up) and conditioner
Thats all I do really. Im not big on styliing my hair, but if I were I would use a thickening cream and blow it upside down. That makes it really thick.
I know, its about those "spots" though. Soren doesnt help when he pulls MORE of my hair out in my sleep. My temples are bare/bald. When I put my hair in a ponytail, you can see all of my scalp :(
Its not fun.
I know it sounds stupid. Its just hair! But you dont get it until you start losing it....It must be representative of something more.
Anyway, glad you get it. Sorry you are going though it though.
I'm just catching up on your blog.
Check that thyroid if you havent!
I lost all of my hair about twenty-five years ago when I moved to Iowa. Never knew why. Switched to bottled water, rubbed some purple shit on my head, and tried to be okay with it. Of course, I'm not a woman. But like Daisyfae's most of mine grew back. It sucks. I hope you feel better soon.
Ah, I feel like a douche for not getting to this sooner.
A. I'm glad you're now feeling better.
B. This was beautifully written.
Since everyone else has pretty much said all the good helpful things, did you know there was an episode of The Simpsons some years ago that dealt with this? Marge's hair starts falling out in clumps because, it turns out, she's too stressed out. So they hire a nanny who, despite flying in on an umbrella, makes it clear that she is NOT Mary Poppins, she's an original creation that violates no copyrights, and then she sings songs to them.
Actually, I just remembered this and it's absolutely serious: a lot of women use Rogaine and it works for them. I know I've heard that a few times, that Rogaine is used by nearly as many women as men or somet similar statistic. You're definitely not alone.
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